Whatever you believe in please 
for Tylie. She is a pitcher and an amazing great niece. I have had a serious challenge in my life, so I’m very in tune with challenges. You hear about this happening, this is at our front door and very real.
Thank you
We were asked for 3 words to describe Tylie. We couldn't settle on 3. Tylie is Fiesty, Loving
Strong, Nurturing, Gracious, Confident, and slightly Bossy-her Dad's word choice. She has always been my one that loves hard and fights hard. We have called her Little Homer or Granny Pancake since she was 2 years old, because she has been telling us how things are going to go since then.
Tylie was having some subtle symptoms that we took her in to have a MRI for. They found a cancerous brain tumor on her brain stem. I feel like God was pushing me to have these small things looked at and even mentally preparing me enough to pack a bag for Ty and I the night of the MRI. I, however, wasn't prepared for the diagnosis. Dr. Dalan at nw peds, saw us on Tuesday and got us an MRI by Thursday. He went above and beyond. God has opened doors and been by our side every step. We have prayed and begged for his guidance while making big decisions and He showed up. This is not going to be easy, watching your baby girl go through things no child should have to is hard, and we are only a week in.
We believe in a mighty God that can do the impossible. That is our prayer. We pray she beats this through God's miraculous healing or that He guides them to a cure now.
Tylie knows it is serious and that it is brain cancer and that it is difficult to heal but we have the most amazing team at Seattle Children's and she knows God is right by her side. Since the symptoms were still so mild, if you look at Tylie or watch her ride the motorcycle, kick the soccer ball, run and play with her friends, you wouldn't know she was in this battle. She wants to go to school and do everything she can. Thankfully the Drs. have said yes! Do everything you feel like doing Tylie.
We started radiation yesterday and she was a Rockstar. Our first journey is 6 weeks of radiation 5x a week in Seattle. Next is 4 weeks of waiting and a follow up MRI. We will be praying for complete healing at this time. If that is not God's will yet, we will be looking at CAR-T cell clinical trials in Seattle. This tumor is rare and we are literally with one of less than 10 Drs. in the United States that specialize in it. He has also helped start clinical trials for other hospitals, such as St. Judes.
The prognosis isn't great and if you search the technical name, it won't be good news, but truth be told, God has given me a peace like I never dreamed. I don't feel like, if HE heals her, I feel like when HE heals her.
On my bedside table sits a scripture calendar I got a long time ago, possibly 2 years ago now. I rarely flip through it but Tanner changes it for me sometimes. Had I been at home that morning after the diagnosis and seen the scripture for Sept. 8th, it said,
Do not be afraid or discouraged....this battle is not your battle, It is God's. II Chronicles 20:15 NCV
He is showing up and He has given me family and friends that I could never find the words to truly justify how amazing they are. Tylie is not impressed by me asking evey believer in the world to pray for her, but, I told her that's what Mama's do. We would forever be grateful if you would pray for complete healing for our sweet Tylie girl.
for Tylie. She is a pitcher and an amazing great niece. I have had a serious challenge in my life, so I’m very in tune with challenges. You hear about this happening, this is at our front door and very real.Thank you
We were asked for 3 words to describe Tylie. We couldn't settle on 3. Tylie is Fiesty, Loving
Strong, Nurturing, Gracious, Confident, and slightly Bossy-her Dad's word choice. She has always been my one that loves hard and fights hard. We have called her Little Homer or Granny Pancake since she was 2 years old, because she has been telling us how things are going to go since then.
Tylie was having some subtle symptoms that we took her in to have a MRI for. They found a cancerous brain tumor on her brain stem. I feel like God was pushing me to have these small things looked at and even mentally preparing me enough to pack a bag for Ty and I the night of the MRI. I, however, wasn't prepared for the diagnosis. Dr. Dalan at nw peds, saw us on Tuesday and got us an MRI by Thursday. He went above and beyond. God has opened doors and been by our side every step. We have prayed and begged for his guidance while making big decisions and He showed up. This is not going to be easy, watching your baby girl go through things no child should have to is hard, and we are only a week in.
We believe in a mighty God that can do the impossible. That is our prayer. We pray she beats this through God's miraculous healing or that He guides them to a cure now.
Tylie knows it is serious and that it is brain cancer and that it is difficult to heal but we have the most amazing team at Seattle Children's and she knows God is right by her side. Since the symptoms were still so mild, if you look at Tylie or watch her ride the motorcycle, kick the soccer ball, run and play with her friends, you wouldn't know she was in this battle. She wants to go to school and do everything she can. Thankfully the Drs. have said yes! Do everything you feel like doing Tylie.
We started radiation yesterday and she was a Rockstar. Our first journey is 6 weeks of radiation 5x a week in Seattle. Next is 4 weeks of waiting and a follow up MRI. We will be praying for complete healing at this time. If that is not God's will yet, we will be looking at CAR-T cell clinical trials in Seattle. This tumor is rare and we are literally with one of less than 10 Drs. in the United States that specialize in it. He has also helped start clinical trials for other hospitals, such as St. Judes.
The prognosis isn't great and if you search the technical name, it won't be good news, but truth be told, God has given me a peace like I never dreamed. I don't feel like, if HE heals her, I feel like when HE heals her.
On my bedside table sits a scripture calendar I got a long time ago, possibly 2 years ago now. I rarely flip through it but Tanner changes it for me sometimes. Had I been at home that morning after the diagnosis and seen the scripture for Sept. 8th, it said,
Do not be afraid or discouraged....this battle is not your battle, It is God's. II Chronicles 20:15 NCV
He is showing up and He has given me family and friends that I could never find the words to truly justify how amazing they are. Tylie is not impressed by me asking evey believer in the world to pray for her, but, I told her that's what Mama's do. We would forever be grateful if you would pray for complete healing for our sweet Tylie girl.
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