Thoracic Outlet Syndrome

[4 girl's dad]

Ive done a little searching here. Even found a terrible thread from a great poster (Obbay) whose DD died during surgery for TOS (Thoracis Outlet Syndrome) . I have also seen a lot of positive stories as well and we are seeing one of the best in the country for this issue. Just curious if any of our other members have any experience with it.


A little background: DD told me last Sep that she felt a pop when doing long toss. (Outfield fence to home) She played through it all of fall and then during winter BBall, she had her feet taken out from under her on a rebound and landed flat on her side dislocating a rib and hurting her pretty good. we started spring ball but it was quickly cut off and then COVID .... we started ball back in late may and played 30 games from June to mid July. She played all but 2 games, sitting those due to pain/numbness/tingling in her hand and elbow. We’ve had two opinions and two MRIs on her shoulder and elbow (both clean of issues) and both point to TOS so tomorrow we are visiting with Dr Pearl in Dallas.. She did go to a local specialist and he found her rib still out of place, along with her colllarbone and sternum And he put out back and she felt great but it didnt stick. As soon as she started working again, it came back so now we are looking for a permanent fix.

Here is a little video on Dr Pearl and how they fix it The issue.

Thoracic Outlet Syndrome

DD is a freshman so we have some time.

 

[BigSkyHi]

Best wished to you all. Saw this video that may help someone.

 

[STRIKE3]

This is a tough one for me.......so bare with me. Obbay's DD who passed away broke all our hearts. I still can't believe it happened to such an Angel and feel for him and his family and always will.

With that said, Dr. Pearl is a great surgeon. The operating room that you posted is one I spend alot of time in. It is first class and the hospital itself is second to none in Dallas. Dr. Pearls group is a large group full of talented surgeons. While I don't do alot with him I do spend alot of time with a few of his other partners. They all have their "specialties" in vascular surgery and are very good.

That said, please don't take my "word" on any of this. I will just say a prayer for you all that you find a good solution that you are comfortble with. God will be by your side on whatever you choose. I wish your DD well on whatever choice that is.

S3

 

[NumbersGuy]

2 years ago DD (8th grade at the time) had numbness and tingling in right arm during a winter lesson. She had been recovering from a previous injury in her neck and shoulder from a few months earlier.

We took her to local drs for X-rays and found that she had broken her first rib a few weeks /months earlier. We never exactly pin pointed the cause but somehow it had been fractured. We were advised to start meeting with TOS surgeons to discuss options. We visited multiple TOS specialist and settled with DR Lum at Johns Hopkins in Baltimore.

Dr. Lum believed that the scare tissue from the first rib healing was irritating the nerves and causing the TOS symptoms. Lucky for her (and her parents) the issue was not arterial only nerve related and was resolved with months of PT.

I remember that time of doctor visits as extremely stressful. All of the wondering what could happen and how it could affect DD in so many ways other then softball. Really helped to gain perspective.

From the video you posted it looks like you have selected a great surgeon. I wish your DD and family the best and pray for a quick return to health and happiness both on and off the diamond.


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[DrRiello]

You need to talk to @Tango
Their daughter had it and recovered with the correct treatment.


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[4 girl's dad]

Just left the doc and they are scheduled for surgery ASAP, hopefully next week.
3-6 months for full recovery. Nervous but glad for the path we are on so we can get back to life.

 

[Tango]

Anyone that would like can DM me and I will be glad to tell you about my DD experience. No issues for over a year now. Threw a no hitter this weekend in a 1-0 win.

 

[L.J.]

Whatever you do make sure they are a vascular surgeon. I've had 2 TOS surgeries. Both were done at UCLA by Dr Hugh Gelabert. They both turned out real well.

 

[DrRiello]

I recommend to @Tango to see a sports chiropractor that’s specialized in extremity work to check the clavicle and first run complex. Adjust if needed. They did and she has made full recovery. Surgery is permanent and you may want to check less aggressive options before that.
You may have already done gone that route but if not it’s a less painful and easier recovery option.


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[Tango]

I recommend to @Tango to see a sports chiropractor that’s specialized in extremity work to check the clavicle and first run complex. Adjust if needed. They did and she has made full recovery. Surgery is permanent and you may want to check less aggressive options before that.
You may have already done gone that route but if not it’s a less painful and easier recovery option.


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I would explore all options before surgery. Glad to talk with anyone that would like. My DD's story is pretty amazing and I do not think she actually had what most people call TOS. Her clavicle was out of place and adjusted within 5 minutes.