- Oct 16, 2019
My daughter has Ehlers Danlos Syndrome - a genetic disorder that affects joints and evidently can enlarge the aorta - but hers is very minor. She is only 9 and wanted to start pitching and I never would allow her to, due to fear of wearing out her shoulder. So as soon as some pandemic restrictions were lifted, she had thorough evaluation by the good doctors at Marshall University Sports Medicine group and also their Pediatric Cardiology unit. She was given an all clear on all account - Dr. Hendricks at MU said, "we don't know what she can't do until she can't do it" and then warned us that her shoulder pain will likely mean more than most other girls shoulder pain. So I try to monitor her closely, though she has not started pitching just yet - next month she will begin lessons. I worry about over use simply because of the disorder. Trying to get time off and still be in an organization is tough, and we are not in a "big-time" organization, but one we do like as it has good people running it. We have one last tournament in 10 days and then it will hopefully be practice on Sunday's only and she can rest...if only I could keep her from flipping on the trampoline.